Posted by Sylvia_FL on 4/24/06 12:04pm Msg #115525
Sylvia is back thread from below.
First, I am back on the boards on a limited basis. I am getting stronger but still not up to par.
I really appreciate all the cards and flowers received, and I thank all those that sent them.
I got the most wonderful basket of flowers that was delivered the day I came out of ICU. It was from Mercury Transaction Services who I have only ever done one signing for and that was about a year ago - Susan from Mercury Transaction was the beautiful person who went out of her way to find a poster for a friend of mine who was dying of cancer. The basket of flowers contained a small angel, and every time I opened my eyes that was the first thing I saw, the little angel. The flowers have long since withered away, but that little angel who was watching over me, has a special place on display in my home.
Margaret/FL sent me a lovely red hatted lady which I also have on display in my precious things cabinet.
Everyone has been so thoughtful - I even found out Dogmongers real name <ggg>
PAW even drove for 3 hours to visit me in the hospital and called every day! I think I'll keep him around as a very good friend <g>
I have to see the surgeon again in July and he is going to discuss reversing the colostomy. He says I have to be 100% fit first.
Please all, check what medications you are taking and what effects they can have on you. Because of the RA the rheumatologist had me on Humira and Cellcept. These affect the autoimmune system (RA is an autoimmune disease) I had changed rheumatologists because the previous one wouldn't take me off the methotrexate and it was affecting my liver. This new rheumatologist put me on the Humira and Cellcept. I asked him specifically if the Cellcept was safe. He assured me it was. The night I was taken to the hospital, the surgeon told me that the Cellcept was a very dangerous drug, it is mainly given to transplant patients so they don't reject the transplants. Because of these drugs my body would not fight infections. The surgeon told me the next day that he hadn't expected me to survive. My recovery was slow because of these drugs.
I am doing better now but not up to par yet. But I will get there!!!!
Thank you all again for your thoughts, prayers, cards and flowers. You are a wonderful "family"
| Reply by Ndwa on 4/24/06 12:08pm Msg #115526
What a joy it is to see your post at top of the page as I just logged on. Welcome back Sylvia!
| Reply by SueW/Tn on 4/24/06 12:12pm Msg #115527
I concur, sooooooo happy to see you back Sylvia, you have been missed! Kudos to you for sharing, too many of us take what the Drs. say as law. I recently notarized some docs for a lady that took meds that have destroyed her, FOLKS it's important we know what it is we're taking and exactly what can happen. This is where the internet comes into play, we must educate ourselves.
| Reply by JanetK_CA on 4/25/06 11:50pm Msg #115997
Amen to that!!
Doctors are human, too, and can make mistakes, as I've also learned the hard way, although not quite as drastically. Thank goodness for the internet and the opportunity to look up information on drugs we are taking!
I haven't logged on here for several weeks, but seeing your name on the boards again, Sylvia, made me glad I did today! I wish you continued strength and improvement and a complete recovery soon!!
| Reply by hcampersFL on 4/24/06 12:32pm Msg #115533
I'm so happy to see your post.
I wish you a speedy recovery Sylvia. I have had you in my thoughts and prayers since first hearing of your illness. You are a strong woman and I am confident you will make it through this with flying colors! Take care of yourself and keep up posted! Beverly
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